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  4. Social disconnectedness and perceived social isolation in persons with spinal cord injury/ dysfunction living in the community: A scoping review

Social disconnectedness and perceived social isolation in persons with spinal cord injury/ dysfunction living in the community: A scoping review

The Journal of Spinal Cord Medicine, 2023 · DOI: 10.1080/10790268.2022.2129170 · Published: May 1, 2023

Spinal Cord InjuryRehabilitationSocial Support

Simple Explanation

This review looks at research on social isolation among adults with spinal cord injuries (SCI/D) who live in the community. It focuses on two types of isolation: social disconnectedness (lack of contact with others) and perceived social isolation (feelings of loneliness). The review identifies factors that affect social isolation in this group and highlights gaps in current research, aiming to inform future interventions.

Study Duration
Not specified
Participants
37 articles reviewed
Evidence Level
Scoping Review

Key Findings

  • 1
    Most studies focused on perceived social isolation (PSI), with fewer addressing social disconnectedness.
  • 2
    Factors influencing social disconnectedness and PSI included participant characteristics, social support, psychological well-being, participation in activities, the built environment and physical health.
  • 3
    There's inconsistency in how social disconnectedness and PSI are measured and defined across studies, making comparisons difficult.

Research Summary

This scoping review aimed to understand the existing literature on social disconnectedness and perceived social isolation (PSI) among adults with spinal cord injury/dysfunction (SCI/D) living in the community. The review identified 37 relevant articles, noting a predominant focus on PSI over social disconnectedness and inconsistencies in the conceptualization and measurement of both. Key factors influencing social disconnectedness and PSI included sociodemographic characteristics, injury characteristics, social support, psychological well-being, participation in activities, the built environment, and physical health.

Practical Implications

Standardized Measures

Develop and use consistent, validated tools for measuring social disconnectedness and perceived social isolation specific to the SCI/D population.

Targeted Interventions

Design interventions addressing modifiable factors like social support, psychological well-being, and environmental accessibility to mitigate social isolation.

Etiology Considerations

Investigate the influence of SCI/D etiology (traumatic vs. non-traumatic) on social disconnectedness and perceived social isolation to tailor interventions accordingly.

Study Limitations

  • 1
    Potential for human error in literature selection.
  • 2
    Inconsistent terminology across included studies.
  • 3
    Lack of quality assessment of included articles.

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