Rehabilitation Professionals’ Perspectives on Psychosocial Needs of Family Caregivers of Persons with Spinal Cord Injury: A Qualitative Study from India

This study explores the perspectives of rehabilitation professionals in India regarding the psychosocial needs of family caregivers (FCGs) of persons with spinal cord injuries (PwSCI). It identifies key areas where caregivers require support, aiming to inform the development of tailored interventions. The research highlights that FCGs often face challenges in managing their own well-being while caring for PwSCI. This includes informational, psychological, and personal care needs, as well as financial, social, and vocational support. Ultimately, this study seeks to bridge the gap in understanding the unique needs of FCGs in the Indian sociocultural context. By doing so, it aims to facilitate the creation of effective, need-based support systems that improve the quality of life for both caregivers and PwSCI.

• 1
  The study identified nine key need themes: informational, psychological, personal care, financial, social support, welfare, vocational, telemedicine, and referral.
• 2
  Experts emphasized that FCGs need education about the nature of SCI, symptom management, and the importance of diet and sleep hygiene for PwSCI.
• 3
  The study highlighted the importance of addressing the vocational needs of FCGs, including help obtaining jobs, starting self-employment, and continuing their education or jobs.