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  4. Protecting the most vulnerable among us: Access to care and resources for persons with disability from spinal cord injury during the COVID-19 pandemic

Protecting the most vulnerable among us: Access to care and resources for persons with disability from spinal cord injury during the COVID-19 pandemic

PM&R, 2021 · DOI: 10.1002/pmrj.12576 · Published: January 1, 2021

Spinal Cord InjuryCOVID-19Healthcare

Simple Explanation

The COVID-19 pandemic has created many challenges for people with spinal cord injuries and disorders (SCI/D), especially regarding access to caregivers and medical resources. Many individuals with SCI/D rely on family members for care, and these caregivers may face increased stress, financial difficulties, and isolation during the pandemic. There are concerns that scarce medical resources, like ventilators, might be unfairly rationed, potentially disadvantaging individuals with disabilities.

Study Duration
Not specified
Participants
Three veterans with SCI/D
Evidence Level
Level V, Expert Opinion/Case Reports

Key Findings

  • 1
    Individuals with SCI/D face challenges in maintaining consistent caregiver support due to the pandemic.
  • 2
    The pandemic raises concerns about equitable access to life-sustaining resources for individuals with SCI/D.
  • 3
    The VA SCI/D system provides a more robust safety net compared to non-VA systems, but vulnerabilities still exist.

Research Summary

The COVID-19 pandemic has disproportionately impacted individuals with spinal cord injuries and disorders (SCI/D), particularly regarding access to caregivers and life-sustaining resources. The study highlights the importance of contingency planning, risk assessment, and caregiver support to protect this vulnerable population during crises. It emphasizes the need for equitable resource allocation frameworks that avoid discrimination against specific patient groups.

Practical Implications

Enhance Caregiver Support

Provide caregivers with adequate PPE, training, and access to updated COVID-19 guidelines.

Implement Disaster Preparedness Protocols

Develop standardized needs assessments and disaster-preparedness protocols to address vulnerabilities in caregiver supply.

Ensure Equitable Resource Allocation

Adopt robust and equitable frameworks for resource allocation that avoid categorical discrimination against individuals with SCI/D.

Study Limitations

  • 1
    Small sample size (three case vignettes)
  • 2
    Limited generalizability beyond the VA healthcare system
  • 3
    Lack of quantitative data on the prevalence of the described challenges

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