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  4. Primary care for persons with spinal cord injury — not a novel idea but still under-developed

Primary care for persons with spinal cord injury — not a novel idea but still under-developed

The Journal of Spinal Cord Medicine, 2016 · DOI: 10.1080/10790268.2016.1182696 · Published: September 1, 2016

Spinal Cord InjuryHealthcare

Simple Explanation

Primary care for individuals with spinal cord injury (SCI) has been a recognized need for a long time, but there is still no agreement on what it should include or how it should be provided. People with SCI often find ways to get primary care through family doctors and specialists depending on the healthcare system of their country. The 'medical home' model, which emphasizes a patient-centered approach, could be a suitable model for SCI primary care. This model would require appropriate funding, access to facilities, SCI knowledge, collaboration between different healthcare providers, and engagement with individuals who have SCI. The SCI community should actively support SCI primary care through effective advocacy and implementation to improve healthcare services for persons with SCI.

Study Duration
Not specified
Participants
Not specified
Evidence Level
Not specified

Key Findings

  • 1
    Despite the acknowledged importance of primary care for persons with SCI, a standardized approach is lacking, and there is no consensus on its delivery.
  • 2
    Persons with SCI often navigate primary care through various avenues, including family physicians and specialists, depending on their country's healthcare structure.
  • 3
    The medical home model is suggested as an ideal approach, but its implementation requires addressing healthcare funding, access to facilities, SCI knowledge, interdisciplinary collaboration, and active engagement with persons with SCI.

Research Summary

Primary care for persons with spinal cord injury (SCI) has long been recognized as an important issue, yet there is no consensus on its specific components, delivery pathways, or models. The 'medical home' model is suggested as an ideal framework for SCI primary care, requiring appropriate funding, accessible facilities, SCI expertise, interdisciplinary collaboration, and the active involvement of persons with SCI. The SCI community should actively promote SCI primary care through advocacy and implementation to ensure comprehensive and coordinated healthcare services for individuals with SCI.

Practical Implications

Enhanced Primary Care Access

Improving access to primary care for individuals with SCI requires addressing physical accessibility, coordinating specialized skills, and ensuring that primary care providers understand the unique needs of this population.

Standardized Guidelines and Training

The development of interdisciplinary special interest groups can lead to standardized SCI primary care guidelines, outlining the necessary goals and requirements for care delivery in various settings.

Collaborative Care Models

Effective collaboration between community-based providers and facility-based specialists is essential to combine expertise and deliver the right care at the right time and place.

Study Limitations

  • 1
    Lack of consensus on the contents, pathway, or delivery model of primary care for persons with SCI.
  • 2
    Limited research and clinical practice guidelines in the area of primary care for persons with SCI.
  • 3
    Variations in healthcare delivery models across different countries impact primary care utilization and access for persons with SCI.

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