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  4. Mobilizing registry data for quality improvement: A convergent mixed-methods analysis and application to spinal cord injury

Mobilizing registry data for quality improvement: A convergent mixed-methods analysis and application to spinal cord injury

Frontiers in Rehabilitation Sciences, 2023 · DOI: 10.3389/fresc.2023.899630 · Published: April 3, 2023

Spinal Cord InjuryHealthcareRehabilitation

Simple Explanation

This study explores how to improve the quality of rehabilitation care for people with complex chronic conditions, focusing on spinal cord injury (SCI) as a case study. It looks at how registry data (information collected in databases) can be used more effectively for quality improvement (QI). The study combines a review of existing research with interviews of experts to understand the best ways to use registry data for QI in SCI care. The goal is to provide practical strategies for using registry data to improve collaboration between different healthcare providers and ultimately enhance the care of people with complex conditions.

Study Duration
Not specified
Participants
11 multidisciplinary stakeholders
Evidence Level
Not specified

Key Findings

  • 1
    Enhancing the utility and reliability of registry data is crucial for successful QI initiatives.
  • 2
    Forming a steering committee led by clinical champions is important for guiding and promoting QI efforts.
  • 3
    Designing effective, feasible, and sustainable QI initiatives is essential for long-term success in improving care.

Research Summary

This study highlights the importance of interdisciplinary partnerships to support QI of care for persons with complex conditions. It provides practical strategies to determine mutual priorities that promote implementation and sustained use of registry data to inform QI. Learnings from this work could enhance interdisciplinary collaboration to support QI of care for rehabilitation for persons with complex chronic conditions.

Practical Implications

Improve Registry Data Quality

Focus on enhancing data quality, validity, and access to ensure that registry data is reliable and useful for QI initiatives.

Foster Collaboration

Promote interdisciplinary collaboration, including patients, to develop mutual priorities and strategies for QI.

Implement Sustainable QI Strategies

Design QI initiatives that are feasible, sustainable, and integrated into existing workflows to ensure long-term success.

Study Limitations

  • 1
    Limited research to draw from with poor quality research, small sample sizes, or no comparison groups
  • 2
    Barriers to access and use registry data as well as the cost to use and implement the data
  • 3
    Missing or incomplete data for priority variables of SCI care

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