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  4. Living with spinal cord injury in Mongolia: A qualitative study on perceived environmental barriers

Living with spinal cord injury in Mongolia: A qualitative study on perceived environmental barriers

The Journal of Spinal Cord Medicine, 2020 · DOI: 10.1080/10790268.2019.1565707 · Published: July 1, 2020

Spinal Cord InjuryAccessibilityRehabilitation

Simple Explanation

This study explores the environmental challenges faced by individuals with spinal cord injuries (SCI) in Mongolia. It aims to identify the barriers in their daily lives, focusing on aspects like physical accessibility, societal attitudes, and availability of services. The research uses interviews to understand the personal experiences of people living with SCI. The study looks at various environmental factors that impact individuals with SCI, including difficulties in accessing buildings and transportation, negative attitudes from society, and inadequate healthcare services. It also considers the financial constraints and legal issues that affect their quality of life. Ultimately, this research seeks to inform interventions that can improve the lives of people with SCI in Mongolia, a low-resource country. By understanding the specific barriers they face, the study aims to help in developing targeted solutions and policies.

Study Duration
September to December 2016
Participants
16 persons with traumatic SCI
Evidence Level
Not specified

Key Findings

  • 1
    Participants reported poor access to physical environments, including buildings without ramps or lifts and inadequate restrooms. This limited their mobility and independence in daily activities.
  • 2
    The absence of wheelchair-friendly transportation options restricted participants' access to activities outside their homes, forcing them to rely on family members or expensive private transport.
  • 3
    Negative societal attitudes, stemming from cultural beliefs and lack of awareness, led to discrimination and distress, affecting the psychological well-being of individuals with SCI.

Research Summary

This qualitative study identifies environmental barriers faced by individuals with SCI in Mongolia, revealing challenges related to physical accessibility, transportation, societal attitudes, healthcare, assistive devices, finances, and legal categorization of disabilities. The identified barriers significantly impact the participants' physical and psychological health, restrict their activities, and limit their participation in various aspects of life. The study emphasizes the need for better enforcement of existing laws and policies, improved specialized SCI care and rehabilitation services, and strategies to address negative societal attitudes to enhance the lived experience of persons with SCI in Mongolia.

Practical Implications

Policy Enforcement

Stronger enforcement of existing accessibility laws is needed to improve physical access and transportation options for individuals with SCI.

Healthcare Improvement

Specialized SCI care and rehabilitation services should be developed and made accessible to address secondary health conditions and improve self-management skills.

Awareness Campaigns

Public awareness campaigns are needed to combat negative societal attitudes and promote inclusivity for individuals with disabilities.

Study Limitations

  • 1
    The study included only persons with traumatic SCI, limiting generalizability to the entire SCI population in Mongolia.
  • 2
    Sampling did not account for the level of injury or sex, potentially missing nuances in the experiences of different subgroups.
  • 3
    The study focused on individuals aged 18–45, excluding the perspectives of older adults aging with SCI.

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