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  4. Integrating the perspectives of individuals with spinal cord injuries, their family caregivers and healthcare professionals from the time of rehabilitation admission to community reintegration: protocol for a scoping study on SCI needs

Integrating the perspectives of individuals with spinal cord injuries, their family caregivers and healthcare professionals from the time of rehabilitation admission to community reintegration: protocol for a scoping study on SCI needs

BMJ Open, 2017 · DOI: 10.1136/bmjopen-2016-014331 · Published: January 1, 2017

Spinal Cord InjuryHealthcareRehabilitation

Simple Explanation

This study aims to integrate the needs of individuals with spinal cord injuries (SCI) from the perspectives of themselves, their family caregivers, and rehabilitation professionals. The study will use two theoretical models to synthesize needs and classify them as met or unmet, exploring their evolution from rehabilitation admission to community reintegration. The ultimate goal is to provide recommendations to improve SCI care by understanding the needs of different stakeholders throughout the rehabilitation process.

Study Duration
Not specified
Participants
Adults with traumatic and non-traumatic SCI, their family caregivers, and rehabilitation professionals
Evidence Level
Not specified

Key Findings

  • 1
    The study aims to identify the most frequent met and unmet needs reported by adults with traumatic and non-traumatic SCI, their family caregivers, and their rehabilitation professionals.
  • 2
    The research will classify these needs according to the hierarchy of human needs and the Ferrans et al’s model of HRQoL.
  • 3
    The study intends to explore how these needs evolve from the time of rehabilitation admission to community reintegration, providing a comprehensive understanding of SCI needs.

Research Summary

This scoping study protocol outlines a methodology for reviewing the literature on spinal cord injury (SCI) needs from the perspectives of individuals with SCI, their family caregivers, and healthcare professionals. The study aims to synthesize these needs using Maslow’s hierarchy model and the Ferrans et al’s model of health-related quality of life, classifying them as met or unmet across the rehabilitation continuum. The results are expected to inform rehabilitation practices, service provision, research agendas, intervention development, and policy-making to improve the satisfaction of SCI needs.

Practical Implications

Informed Rehabilitation

Clinicians can gain increased awareness about the complexity of SCI expressed and unmet needs.

Modified Service Provision

Understanding the gap between unmet and expressed needs can lead to modified service provision.

Improved Policy Making

Policy makers can implement modifications to existing programs to increase SCI needs satisfaction.

Study Limitations

  • 1
    Scoping studies do not appraise the quality of the evidence.
  • 2
    Generalisation is limited to the SCI population.
  • 3
    Studies in languages other than English are excluded.

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