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  4. Functional recovery priorities and community rehabilitation service preferences of spinal cord injury individuals and caregivers of Chinese ethnicity and cultural background

Functional recovery priorities and community rehabilitation service preferences of spinal cord injury individuals and caregivers of Chinese ethnicity and cultural background

Frontiers in Neurology, 2022 · DOI: 10.3389/fneur.2022.941256 · Published: August 3, 2022

Spinal Cord InjuryRehabilitationPublic Health

Simple Explanation

This study explores the priorities for functional recovery and preferences for community rehabilitation services among Chinese individuals with spinal cord injury (SCI) and their caregivers. It also looks at their views on advanced technology and research. The study found that tetraplegics prioritize arm/hand function recovery, while paraplegics prioritize bladder/bowel function. Sexual function was ranked lowest by all groups. Most participants felt community rehabilitation services were inadequate but were interested in advanced technology. The findings aim to help plan future research and rehabilitation services for the SCI community, particularly within Chinese populations, and consider the often-overlooked perspectives of primary caregivers.

Study Duration
1 September−31 December 2021
Participants
87 subjects (74 individuals with SCI and 13 caregivers)
Evidence Level
Original Research

Key Findings

  • 1
    Tetraplegics prioritize recovery of arm/hand function, followed by upper trunk/body strength and balance, and bladder/bowel function.
  • 2
    Paraplegics view bladder/bowel function as the most important area of functional recovery, followed by walking movement and upper trunk/body strength and balance.
  • 3
    Sexual function was ranked as the lowest priority by all three groups of respondents: tetraplegics, paraplegics, and caregivers.

Research Summary

This study investigated the priorities for functional recovery and preferences for community rehabilitation services among Chinese individuals with SCI and their caregivers, also examining their views on advanced technology and research. Key findings revealed that tetraplegics prioritize arm/hand function, paraplegics prioritize bladder/bowel function, and sexual function consistently ranked lowest across all groups. Community rehabilitation services were generally viewed as inadequate. The study concludes that these findings offer valuable insights for tailoring rehabilitation services and guiding future research efforts to improve the quality of life for the SCI community, especially within Chinese cultural contexts.

Practical Implications

Tailored Rehabilitation Programs

Rehabilitation programs should be tailored to prioritize arm/hand function for tetraplegics and bladder/bowel function for paraplegics to align with patient priorities.

Improve Community Services

There is a need to enhance community rehabilitation services, particularly physiotherapy, occupational therapy and nursing care, to meet the needs of SCI individuals and their caregivers.

Technological Integration

Explore integrating advanced technologies, like robotics and smart home modifications, into rehabilitation to improve the quality of life for individuals with SCI, addressing the high interest expressed by participants.

Study Limitations

  • 1
    The inability to assign relative weights for different impairments due to the integral ranking method used.
  • 2
    Sampling bias potentially skewing responses to specific demographics of the cohort.
  • 3
    Small subgroup sizes potentially affecting the statistical significance of findings.

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