Spinal Cord Research Help
AboutCategoriesLatest ResearchContact
Subscribe
Spinal Cord Research Help

Making Spinal Cord Injury (SCI) Research Accessible to Everyone. Simplified summaries of the latest research, designed for patients, caregivers and anybody who's interested.

Quick Links

  • Home
  • About
  • Categories
  • Latest Research
  • Disclaimer

Contact

  • Contact Us
© 2025 Spinal Cord Research Help

All rights reserved.

  1. Home
  2. Research
  3. Spinal Cord Injury
  4. Feasibility and Acceptability of a Codesigned Health Care Transition Intervention for Young People With Spinal Cord Injuries

Feasibility and Acceptability of a Codesigned Health Care Transition Intervention for Young People With Spinal Cord Injuries

Top Spinal Cord Inj Rehabil, 2023 · DOI: 10.46292/sci22-00049 · Published: July 1, 2023

Spinal Cord InjuryHealthcareTelehealth & Digital Health

Simple Explanation

Adults with pediatric-onset spinal cord injuries often face challenges such as lower life satisfaction and poorer perceived physical health. Successfully transitioning to adult health care is crucial for preventing medical complications in these individuals. This study evaluates a web-based health care transition intervention co-designed with young people with spinal cord injuries and their caregivers to support their move to adult health care. The intervention, the SCI Healthcare Transition website, provides a step-by-step guide to the HCT process, categorized by age, that includes tools, tips and resources to help prepare for the move.

Study Duration
Not specified
Participants
3 young people with SCI, 3 parents/caregivers, and 4 health care professionals
Evidence Level
Qualitative feasibility study

Key Findings

  • 1
    The web-based health care transition intervention was found to be feasible and acceptable among young people with spinal cord injuries, their parents/caregivers, and health care professionals.
  • 2
    Participants responded positively to the intervention and believed it would be useful, expressing intent to continue using it and recommend it to others.
  • 3
    Further consideration is needed for implementation and integration of the intervention into the current transition process, including educating health care providers on its use and ensuring buy-in from pediatric SCI health care services.

Research Summary

This study assessed the feasibility and acceptability of a codesigned web-based intervention, the SCI Healthcare Transition website, to support young people with SCI transitioning to adult health care. The intervention was found to be feasible and acceptable based on Bowen et al.'s framework, with positive feedback regarding its usability, content, and potential impact on empowering young people and reassuring parents/caregivers. Challenges remain in the areas of implementation and integration, requiring further efforts to educate health care providers and ensure ownership by pediatric SCI health care services to promote sustained use and recommendation of the website.

Practical Implications

Empowering young people

The website can empower young people with SCI by providing them with a better understanding of the HCT process and engaging them in getting ready for adult health care services.

Reassuring parents/caregivers

The website can reassure and comfort parents/caregivers by providing them with access to transition-related information and the knowledge that other parents/caregivers have gone through the same process.

Guiding health care professionals

The website can be employed as a reference point or ice breaker for conversations around transition to adult health care within clinics. Health care professionals can guide young people and their parents/caregivers through the website and use it to facilitate conversation.

Study Limitations

  • 1
    Small sample size
  • 2
    Lack of representative sample
  • 3
    Digital literacy of the sample

Your Feedback

Was this summary helpful?

Back to Spinal Cord Injury