Top Spinal Cord Inj Rehabil, 2023 · DOI: 10.46292/sci22-00049 · Published: July 1, 2023
Adults with pediatric-onset spinal cord injuries often face challenges such as lower life satisfaction and poorer perceived physical health. Successfully transitioning to adult health care is crucial for preventing medical complications in these individuals. This study evaluates a web-based health care transition intervention co-designed with young people with spinal cord injuries and their caregivers to support their move to adult health care. The intervention, the SCI Healthcare Transition website, provides a step-by-step guide to the HCT process, categorized by age, that includes tools, tips and resources to help prepare for the move.
The website can empower young people with SCI by providing them with a better understanding of the HCT process and engaging them in getting ready for adult health care services.
The website can reassure and comfort parents/caregivers by providing them with access to transition-related information and the knowledge that other parents/caregivers have gone through the same process.
The website can be employed as a reference point or ice breaker for conversations around transition to adult health care within clinics. Health care professionals can guide young people and their parents/caregivers through the website and use it to facilitate conversation.