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  4. “Back at the same level as everyone else”—user perspectives on walking with an exoskeleton, a qualitative study

“Back at the same level as everyone else”—user perspectives on walking with an exoskeleton, a qualitative study

Spinal Cord Series and Cases, 2019 · DOI: https://doi.org/10.1038/s41394-019-0243-3 · Published: November 3, 2019

Spinal Cord InjuryAssistive TechnologyRehabilitation

Simple Explanation

This study explores the experiences of individuals with spinal cord injuries (SCI) using the Ekso™ exoskeleton during rehabilitation. It uses qualitative interviews to understand their perspectives on standing and walking with the device. The research focuses on the emotional and physical aspects of using the exoskeleton, including feelings of freedom, control, and the impact on their sense of self and body image. The study highlights both the positive aspects, such as empowerment and improved physical sensations, and the challenges, like the realization of loss and the device's limitations in everyday life.

Study Duration
Fall 2013 to Spring 2014
Participants
Three men with SCI
Evidence Level
Qualitative study

Key Findings

  • 1
    Participants experienced largely positive emotions, such as empowerment and increased self-esteem, related to standing and walking with the exoskeleton, but none would trade it for their wheelchair.
  • 2
    The use of the exoskeleton reactivated feelings of loss associated with their paralysis, as participants realized how much they missed being able to stand and walk independently.
  • 3
    Participants described a tension between feeling free and restricted while using the exoskeleton, as the device provided stability but also felt tight and unnatural.

Research Summary

This qualitative study explores the experiences of individuals with spinal cord injury (SCI) using the Ekso™ exoskeleton for rehabilitation, revealing both positive and challenging aspects. Key themes include the emotional impact of standing and walking, the reactivation of loss, the feeling of being both free and restricted, and the struggle between being controlled by and taking control of the device. The study emphasizes the importance of considering user perspectives when evaluating new rehabilitation technologies and highlights the complex relationship between technology, the body, and the sense of self.

Practical Implications

Rehabilitation Programs

Incorporate user feedback into exoskeleton training programs to address emotional and physical challenges.

Exoskeleton Design

Focus on improving the comfort, ease of use, and control of exoskeletons to enhance user experience and promote embodiment.

Psychosocial Support

Provide counseling and support to help individuals cope with the emotional impact of using exoskeletons, including feelings of loss and hope.

Study Limitations

  • 1
    Small number of participants
  • 2
    Limited variation in participant characteristics
  • 3
    The device is new, leading to few available participants.

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