A Meaning of Well-Being: From the Experience of Paraplegic

Asian Spine Journal, 2013 · DOI: 10.4184/asj.2013.7.1.20 · Published: February 1, 2013

Spinal Cord Injury Participation Rehabilitation

Simple Explanation

This study explores how Pakistani adults with paraplegia perceive their well-being, as this perspective is often missing in rehabilitation programs. Researchers conducted in-depth interviews with 50 paraplegic adults from different rehabilitation centers in Pakistan, asking them about what is important in their lives and how they define well-being. The study identified three main themes related to well-being: living with independence, living with self-esteem, and living well without suffering, each comprising specific components.

Study Duration

Not specified

Participants

50 paraplegic adults (32 males and 18 females)

Evidence Level

Level IV, Retrospective study

Key Findings

1
Participants emphasized the importance of performing daily activities independently, highlighting the impact of physical limitations and lack of accessible facilities on their well-being.
2
Self-esteem, linked to social acceptance and the ability to contribute to family and society, was crucial for well-being, as participants felt stigmatized and desired opportunities to participate in social functions.
3
Participants reported that being free from health problems (like pressure sores and infections) and negative emotions significantly impacted their well-being, emphasizing the importance of family and friend support.

Research Summary

The study investigated the perspective of Pakistani paraplegic adults on well-being, revealing three major themes and eight components contributing to their overall sense of well-being. The findings highlight the importance of independence in daily living, social acceptance, and freedom from health problems in enhancing the well-being of individuals with paraplegia. The research underscores the necessity of incorporating the perspectives of people with disabilities in rehabilitation programs and addressing their specific needs to improve their quality of life.

Practical Implications

Rehabilitation Program Design

Rehabilitation programs should be designed to address the specific needs and perspectives of individuals with paraplegia, focusing on enhancing independence, promoting social inclusion, and managing health complications.

Policy and Infrastructure

Policies and infrastructure should be developed to improve accessibility for people with disabilities, including accessible transportation, public spaces, and employment opportunities.

Social Awareness

Social awareness campaigns should aim to reduce stigma and promote positive attitudes towards people with disabilities, fostering greater social inclusion and acceptance.

Study Limitations

1
Small sample size from a specific region of Pakistan limits generalizability.
2
Qualitative nature of the study makes it difficult to quantify the impact of each component on well-being.
3
Reliance on self-reported data may be subject to recall bias.

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