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  4. Quality of Life: Information and Learning Resources in Supporting People with Severe Life-Changing Injuries to Return to Independence

Quality of Life: Information and Learning Resources in Supporting People with Severe Life-Changing Injuries to Return to Independence

TheScientificWorldJOURNAL, 2004 · DOI: 10.1100/tsw.2004.110 · Published: July 20, 2004

ParticipationHealthcareRehabilitation

Simple Explanation

This paper discusses a new approach to helping people with severe injuries, especially spinal cord injuries, regain their independence and quality of life. It focuses on providing them with the right information and support to make informed decisions about their recovery. The core of this model is to empower the patient, viewing them as the 'chairman of directors' in their own rehabilitation. This means giving them control over their recovery process and ensuring they have access to the resources they need. The Allan Bean Centre (ABC) at Burwood Hospital in Christchurch, New Zealand, is presented as a practical example of this model. The ABC incorporates a library and learning resource center to provide patients and their support networks with the information and tools they need to navigate their rehabilitation journey.

Study Duration
Not specified
Participants
Patients with severe life-changing injuries, their families, whanau, caregivers, staff, students, and researchers
Evidence Level
Not specified

Key Findings

  • 1
    The study emphasizes the importance of access to quality information and evidence-based resources to support informed decision-making for individuals recovering from severe life-changing injuries.
  • 2
    The integrated care model places the patient at the center of the service, empowering them to take control of their rehabilitation process and regain independence.
  • 3
    The ABC Library has shown promising results in increasing patient engagement and providing a valuable resource for information, learning, and support during rehabilitation.

Research Summary

This paper introduces an integrated care model designed to support individuals with severe life-changing injuries, particularly spinal cord injuries, in their journey toward regaining independence and a good quality of life. The model emphasizes the provision of quality information and learning resources, empowering patients to make informed decisions and take control of their rehabilitation process. The Allan Bean Centre (ABC) at Burwood Hospital in Christchurch, New Zealand, serves as a practical example of this model, incorporating a library and learning resource center to provide comprehensive support to patients and their support networks.

Practical Implications

Empowering Patients

Healthcare providers should adopt patient-centered approaches that empower individuals to take an active role in their rehabilitation.

Information Accessibility

Rehabilitation centers should prioritize the provision of accessible and relevant information resources to support informed decision-making.

Holistic Support

Integrated care models should address the spiritual, psychological, and social needs of patients in addition to their physical injuries.

Study Limitations

  • 1
    The service is in its early developmental stages, as yet there are no measures of change or improvement in the quality of life of the patients.
  • 2
    One of the main problems in measuring change in the quality of life is that we have no knowledge of an individuals’ perceived quality of life before the event.
  • 3
    Funding is still a major issue to maintain the current momentum.

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