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  4. Clients with stroke and non-stroke and their guardians’ views on community reintegration status after in-patient rehabilitation

Clients with stroke and non-stroke and their guardians’ views on community reintegration status after in-patient rehabilitation

Malawi Medical Journal, 2018 · DOI: 10.4314/mmj.v30i3.8 · Published: September 1, 2018

NeurologyRehabilitationPublic Health

Simple Explanation

This study explores the challenges faced by individuals with neurological conditions, such as stroke and spinal cord injuries, when reintegrating into their communities after discharge from a rehabilitation center in Malawi. It looks at both the patients' and their caregivers' perspectives on these difficulties. The research compares community reintegration status over two consecutive years, seeking to understand if there are improvements or persistent issues. It uses interviews and home observations to gather data on the disabilities experienced and the environmental factors affecting reintegration. Guardians, who are family caregivers in Malawi, play a vital role in supporting clients during rehabilitation and after they return home. The study investigates whether guardians' perceptions of reintegration challenges align with those of the clients.

Study Duration
2 Years
Participants
36 clients (stroke and non-stroke) and 32 guardians
Evidence Level
Not specified

Key Findings

  • 1
    Clients with stroke and non-stroke diagnoses experienced moderate to severe levels of disability related to difficulties with reintegration into their home and community settings.
  • 2
    For those with non-stroke diagnoses, there was a significant improvement in reintegration between year 1 and year 2, but not for those with stroke diagnoses.
  • 3
    Guardians' perceptions of clients' disability levels generally agreed with the clients' own perceptions, highlighting the shared understanding of the reintegration challenges.

Research Summary

This study aimed to compare client community reintegration status following discharge from a rehabilitation center in Malawi over two consecutive years, considering both client and guardian perspectives. The results indicated moderate to severe levels of disability related to reintegration difficulties, with non-stroke clients showing improvement over time, while stroke clients did not. Guardians' perceptions aligned with clients' experiences. The study concludes that community reintegration challenges persist for individuals with neurological conditions in Malawi, and there is potential to improve client perception of disability by involving guardians in patient-centered care.

Practical Implications

Guardian Involvement

Actively involve guardians in patient-centered care to bridge the gap between rehabilitation and home environments.

Environmental Assessments

Conduct thorough environmental assessments of clients' homes and communities to identify and address barriers to reintegration.

Guardian Education and Support

Provide guardians with education and support regarding the client's condition, expected recovery, and strategies for coping with their caregiving role.

Study Limitations

  • 1
    Small sample size
  • 2
    Client self-assessment bias
  • 3
    Lack of formal assessment of motor or cognitive function

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